The report of treatment being trialled that could potentially spare bladder cancer patients life-changing surgery is welcome news (Doctors hail drug that spares bladder cancer patients ‘life-changing’ surgery, 2 June). Yet readers currently facing surgery that includes removing their bladder are likely to be concerned about the here and now.
Like Tracey Emin, I was diagnosed with bladder cancer in 2020. Life requires some planning. For example, the paucity of public toilets means mapping alternatives, as bladder bags have much less capacity than a natural bladder. I always carry a spare kit, however; following the advice and guidance of stoma nurse specialists, it is possible to avoid leaks. The Urostomy Association is a mine of useful information.
I can again enjoy all-year-round outdoor swimming and walking, and find entertainment venues helpful in booking end-of-row seats with easy access to toilets.
In my experience, being open with colleagues, friends and family (and, if necessary, complete strangers) is massively beneficial. Explaining that wearing a bladder on the outside requires some adjustments is nothing to be embarrassed about.
To those facing bladder surgery, I say: don’t despair – it is life‑changing, but manageable and, crucially, life-saving.
Gail Cartmail
London
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